So My little guy is almost 4 years old. He was born with a severe heart condition that caused him to be too weak to eat. He got his first tube (NG) at 3 months old, and within days it ws changed to NJ because he was refulxing and vomiting so much.
He took NPO (means no food by mouth, that includes formula, water NOTHING) from 3-10 or so months. Around 10 months he finally learned to take a bottle, but just water.
He got his Gtube and a nissen fundoplication done at 6 months old
Fast forward to now.
He has been in Speech/Feeding thearpy since 9 months old. We have come SO far, from gagging and not eating anything, to drinking milk and juice, eating purees, foods, worked through pocketing and many things.
He now eats a good variety of foods, but not meat. He will eat lunch meats, cubed ham, chicken nuggest, and occasionally chicken (like off a chicken leg). His favorites include ramen noodles, frozen gogurts, hot dogs and bologna... french fries, potato chips, canned veggies- green beans, CREAMED corn, cooked carrots, apples... He will occasionally eat pizza.
Our current biggest struggles include- WEIGHT- getting him to GROW. This balance of enough formula/calories to grow, but little enough to make sure he's hungry=so hard!
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